Muscular Dystrophy Association (MDA)

161 N Clark St Suite 3550 Chicago IL 60601



Alison Tibbits

MDA is committed to transforming the lives of people affected by muscular dystrophy, ALS and related neuromuscular diseases through innovations in science and innovations in care. As the largest source of funding for neuromuscular disease research outside of the federal government, MDA has committed more than $1 billion since our inception to accelerate the discovery of therapies and cures. Research we have supported is directly linked to life-changing therapies across multiple neuromuscular diseases. MDA’s MOVR is the first and only data hub that aggregates clinical, genetic and patient reported data for multiple neuromuscular diseases to improve health outcomes and accelerate drug development. MDA supports the largest network of multidisciplinary clinics providing best in class care at more than 150 of the nation’s top medical institutions. Our Resource Center serves the community with one-on-one specialized support, and we offer educational conferences, events, and materials for families and healthcare providers. Each year thousands of children and young adults learn vital life skills and gain independence at summer camp and through recreational programs, at no cost to families. Volunteers are an important part of MDA’s 70-year history. Through volunteer committees, boards, community events, and Summer Camps where kids build confidence and independence, volunteers are tightly woven into MDA’s fabric. While there is a continued need for volunteers, MDA’s top priority is the health and safety of our families, volunteers, and staff. Due to the community spread of the coronavirus (COVID-19), MDA has made the difficult decision to cancel, postpone, or make virtual many in-person programs and volunteer events. Join us virtually, and help MDA transform the lives of kids and adults living with neuromuscular diseases.

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